Second MEGMA Thalassemia and Hemoglobin Illness Conference in Amman, Jordan- 2016
Emirates Thalassemia Society participated in Second MEGMA Thalassemia and Hemoglobin Illness Conference held in Amman, Jordan from 11th and 12th November 2016, organized by Thalassemia International Federation (TIF) and Jordan Thalassemia Society. An active UAE delegation was formed to successfully participate in the conference and they also had an opportunity to increase their knowledge about Thalassemia through latest treatment developments in the field of Thalassemia. The UAE group of patients had a great time meeting their fellow Thalassemia patients from other countries and happily exchanged experiences. The Association was selected by the Thalassemia International Federation (TIF) as one of the best Thalassemia Associations in the World. Abdul Baset Mardas, Vice Chairman of the Emirates Thalassemia Society, was invited to chair and lecture on the activities of the Society in context of efficient fundraising. The lecture highlighted the various laws enforced in each country pertaining the collection and commitment of donations and identified the importance of the cooperation with various institutions and organizations in the country and how it can offer mutual benefit. It also highlighted that the continuous communication with the community members through commercial media and social media gives exposure to the campaigns and enables the society to acquire the funds necessary to provide the best services to the patients. The very informative lecture concluded with a Q and A session with the audiences. The Society therefore, once again achieved its most important objective to provide the social support to Thalassemia patients and relieve their inner suffering.
The Society was also invited to put up a kiosk to display interesting activities and initiatives in order to benefit all other societies.